An Annoying Mother With Wi-Fi 😂

I think I really spiralled tonight...

I feel like I've  finally met the juggernaut that's been sitting at the end of this road, and for the first time in months, I genuinely wondered if giving up would be easier, simply because I'm exhausted!

But giving up only gives me peace momentarily. It doesn't give Kaedyn anything.

Someone would still have to tell him he can't attend swimming lessons and have to explain why the rest of his class gets to participate while he watches, and somehow... that's always me.

I'm the one who has to explain why the world keeps asking him to be less complicated, just less in general.

I don't ever want him to feel like he's too hard or inconvenient or undeserving of the opportunities presented to the child sitting next him.

It's a fucking shower trolley!!

I've spent months trying to solve something that should have taken a phone call and a purchase order.

Tonight I kept digging, I chipped away through Facebook groups, I dug through old post and shock horror... I found other families.

The same issue, same facility, same emails and responses. Except I don't have the luxury of choosing a different venue.

And then I wondered, how many parents got to this point before deciding they couldn't fight anymore? They took the easier option, and I don't blame them, it's exhausting being louder than everyone else in the room when your asking for something different.

But then just how  many kids missed out because their parents were simply exhausted and opted out of the fight?

And then I found myself asking something that honestly sucks

How do you make someone see the child before the disability? Before the equipment or the risk assessment, before the NDIS plan or the policies.

How do I make someone look at my son and see a cheeky twelve-year-old who loves gaming, adventures, adrenaline and making everyone around him laugh with his sassy nature, instead of seeing a problem.

Because right now, it honestly feels like they see a wheelchair attached to an annoying mother with access to Wi-Fi.

And unlucky for them... That mother is me.

I don't know how this ends...

I do know there are people moving behind the scenes now. I've reached out. Others have stepped in. Things are happening.

Whether it happens in time for Kaedyn's swimming lessons... I honestly don't know.

But I do know that if I walk away now, the next family starts from scratch. History repeats itself, and I refuse to accept that this is the end.

I'm tired, truly tired...some days I feel like I could move mountains, tonight I feel like the mountain landed on me.

Anyway...

I'm going to consider having a strong margarita, reset my eye twitch, and tomorrow I'll probably wake up and become an absolute menace to that goddamn inaccessible infrastructure all over again.

Love that for them, my email is drafted... 

I do own 10 swords, let's settle this the old way... With a good old fashioned duel ⚔️🗡️🤺🤪 ( I jest!)