My Wonderland

 Well, today was chaos… the good kind. The kind where you're sprinting between appointments like a travelling circus act, but somehow it all works out. And by the end of it, your heart is full, your kid thinks he’s a rockstar ( he is ), and you’re somehow still functioning despite running on absolutely no caffeine. But let me backtrack. Because before we talk about the magic of today’s new OT session, there’s a shadow that deserves its own spotlight first... On the way to Little Bodies, Kaedyn asked me a question about his old beloved OT. “Mum, why do you like Julian so much?” How do you explain a person who didn’t just do their job? They changed your life? Julian wasn’t just Kaedyn’s OT. He was part of our family. He still is! We all hold so much love for him, his wife, and his kids; they are every shade of warmth and brilliance. He showed up. Not just physically, but mentally, emotionally, practically. Kind. Grounded. Generous with his time, his memory, his spirit. ...

If You’re Like Me, the Family Organiser... You probably find yourself thinking, “I should write all this down in case something happens to me…” Well, this is my shareable list, the non-therapy stuff I wish I’d had in one place. The real-world, practical gems that make life a little easier when you’re juggling everything. Consider this a gift to all the other parents holding it together behind the scenes.  I figured it was time to write all this down. Because when you’re parenting a child with a disability, just knowing stuff becomes its own kind of survival skill. And yet, most of the best info isn’t in any handbook, it’s just in the abyss and you have to hope you come by it. So here it is. A working list of the helpful, practical, sometimes obscure things I’ve picked up along the way. Some of them might seem small, but trust me: in a world that’s not built for our kids, the small wins matter. HOLIDAYS! And suprisingly cheap or even free! Ronald McDonald Houses These aren’t just ...

Today, something unexpected happened. The NDIA announced a big cut to physiotherapy rates across Australia. Here in WA, it dropped from $224.62 to $183.99 an hour. That's more than $40! For years, we searched for the right physio for Kaedyn. Not just any therapy, but a place where he feels safe, understood, and even happy. Where therapy isn’t just a task but something he can be part of. With Ben and lately Kal, Kaedyn has found that. Therapy hasn't always been fun; sometimes he would cry just knowing he had to go, but he laughs in sessions now. He’s challenged in ways that help him grow. He’s proud of himself. That kind of progress isn’t just physical; it’s about feeling valued and seen. But now, with these cuts, the future feels uncertain for so many of us.  These small clinics, these therapists who care deeply, can’t keep going if funding keeps shrinking. It means fewer appointments, fewer resources that benefit our kids, and the therapists we love just have to walk away...