It's Not Just 30 Minutes

Kaedyn has two physio sessions a week...That’s it, Just two!

Two precious hours where he gets to move without limits. Where his body is supported to stretch, stand, strengthen.

But now, those sessions are being cut.

Not because he needs less. Not because he’s improved. But because behind-the-scenes admin work, goal tracking, documentation, care coordination, have to be more closely billed now due to the funding cuts. So therapists now have to do it inside the session time.

His two one-hour sessions? Slashed to 45 minutes.

That’s 30 minutes gone every single week.

And let me be clear—this isn’t a dig at our therapy team. They’re brilliant. They’ve done everything they can to hold this system together while it quietly crumbles around them.

This is a reality check. A painful, but a very human one, because those 30 minutes? That’s where Kaedyn moves in ways he can’t anywhere else. It’s where he’s strapped into a bungee harness, free from fear of falling. It’s where his muscles are activated, his lungs open, his body is reminded that it is alive.

It’s where he does sit-ups to strengthen his core, the part of him that gives out the fastest. It’s where he stands, shakes, breathes harder and even cries sometimes... but he always finishes!

And now? Now, we’re told to just accept less.

We’re told 45 minutes should be enough...That “it’s only 30 minutes.”

That 30 minutes could be the difference between progress and plateau.

Between hope and heartbreak.

Between Kaedyn getting stronger… or slowly slipping backwards.

Because when he doesn’t move, his body stiffens.

His hips tighten. His spine curves and we risk something else coming along and shaking up our already tumultuous lives.

And the freedom he’s fought for gets taken away in small measures, inch by inch.

Without movement, Kaedyn’s body becomes a prison. I'm not being dramatic, he is stuck in his wheelchair. There are 4 people who manually handle Kaedyn independently, Me, Phil, Ben and Kal. That's it! Everyone else has to use the shifty or hoist. So when I say he is limited, I mean it! His therapy is his freedom...

So no, it’s not about convenience. Or funding lines. Or admin codes. It’s about a little boy who works harder than most grown adults just to sit up. A boy who should be allowed to move.

This is his only chance to feel strong. To stretch and stand and sweat in a body that rarely gives him a break...And we’re cutting it.

I don’t know how to explain what it feels like to watch your child do something as simple as stand, knowing how much pain, how much effort, how much courage it took.

I can't describe the tears I've fought back over the years as I watch him wobble through a movement that would take another kid half a second.

But I do know this—Kaedyn deserves more. Not less.

So when someone says “It’s only 30 minutes,” I want them to understand, it's his freedom, his future.

It’s his one chance to push back against a world that keeps making things harder.

I guess I'm just not going to shut up about this🤷🏽‍♀️